[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[H.R. 8067 Introduced in House (IH)]

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119th CONGRESS
  2d Session
                                H. R. 8067

  To direct the Secretary of Health and Human Services to carry out a 
  program under which the Secretary will collect data with respect to 
   sickle cell disease in the United States, and for other purposes.


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                    IN THE HOUSE OF REPRESENTATIVES

                             March 24, 2026

 Mr. Vindman introduced the following bill; which was referred to the 
                    Committee on Energy and Commerce

_______________________________________________________________________

                                 A BILL


 
  To direct the Secretary of Health and Human Services to carry out a 
  program under which the Secretary will collect data with respect to 
   sickle cell disease in the United States, and for other purposes.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Candis King Hope for Sickle Cell 
Families Act''.

SEC. 2. SICKLE CELL DATA COLLECTION PROGRAM.

    (a) In General.--The Secretary of Health and Human Services, acting 
through the Director of the Centers for Disease Control and Prevention 
(in this Act referred to as the ``Secretary''), shall carry out a 
program under which the Secretary will collect data on the incidence 
and prevalence of sickle cell disease in the United States, to be known 
as the Sickle Cell Data Collection program, through awarding grants to 
States for the following purposes:
            (1) To collect and maintain data on sickle cell disease to 
        gain a better understanding of the incidence and prevalence of 
        sickle cell disease in the United States, the demographics of 
        individuals in the United States living with sickle cell 
        disease, and the healthcare utilization patterns of individuals 
        in the United States living with sickle cell disease.
            (2) To collaborate with other entities who received grants 
        under the Sickle Cell Data Collection program of the Centers 
        for Disease Control and Prevention (as in effect on the day 
        before the date of the enactment of this Act) and the Centers 
        for Disease Control and Prevention for purposes of increasing 
        the standardization of methods for sickle cell disease 
        surveillance.
    (b) Authorization of Appropriations.--There are authorized to be 
appropriated to carry out the program referred to in subsection (a), 
$10,000,000 for each of fiscal years 2027 through 2031.

SEC. 3. DIVISION OF BLOOD DISORDERS AND PUBLIC HEALTH GENOMICS.

    (a) In General.--The Secretary of Health and Human Services shall 
reinstate any covered employee of the Division of Blood Disorders and 
Public Health Genomics of the Centers for Disease Control and 
Prevention.
    (b) Covered Employee Defined.--In this section, the term ``covered 
employee'' means an employee of the Division of Blood Disorders and 
Public Health Genomics of the Centers for Disease Control and 
Prevention who was removed on or after January 1, 2025, under any 
agency action (including any reduction in force conducted pursuant to 
subchapter I of chapter 35 of title 5, United States Code or any agency 
reorganization) that provides for the removal of 3 percent or more of 
the total number of employees at such Division within a 60-day period.
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